Sunday, October 2, 2011
Thursday, July 21, 2011
The following day, we headed to the District of Education of Bhaktapur, where we presented to 22 principals from different schools. Again, there were many heads nodding in recognition to the symptoms of autism and a few people shared that they believe the have family members and students with the disorder. Our presentation seemed to be received very well and we were told that we shared “much good information in a short time”.
The next day, Renee and I spend a lot of time at Autism Care Nepal interviewing parents. They were extremely honest and heartfelt as they told their stories and there were a lot of tears shed. There were many common themes during all of the interviews. 1. They were told by doctors that their child would grow out of whatever was wrong. 2. Their child has rejected by schools and he/she is unable to attend school. 3. They felt very alone until they found other parents (mostly through ACN) who were going through the same thing. 4. They have been told by people in the community that it is their fault because they just can’t control their child. 5. Some were unable to get a diagnosis or find out what was wrong with their child until it was past the crucial early years of necessary intervention. 6. They are extremely grateful that Knowledge for People cares enough about them and their children to come all the way to Nepal to help them.
We know that we are just scratching the surface of the support, interventions, and school programs that are so deserved in Nepal, but we are hopeful that we have uncovered something that can’t be ignored.
Wednesday, July 13, 2011
"Education is kind of a cure. You will at least know how to face the problem" - teacher from a Nepali college
Sunday, July 10, 2011
Tuesday, June 7, 2011
During our trip to Nepal in July 2011 we are focusing on "training the trainers". In Kathmandu, the trainers (aka service providers) are also the parents of the children who have autism. There are currently no school programs and very few professionals who have the training it takes to provide the appropriate intervention that these kiddos need. Families still have difficulty even getting a diagnosis of autism in Nepal and typically have to go to India. Children who have autism are often still ostracized in their own community. Please take a moment to read some short articles about Autism Care Nepal, the organization comprised of parents who we are continuing to work with (we started working with them during our first KfP trip in 2009):
We will be providing extensive training to 30 parents in the areas of communication, sensory integration, Applied Behavior Analysis (ABA), Floortime/DIR, and we will be assisting them with organizing the center (ACN) so that it is in line with the TEACCH model. Parents will be divided into three groups, with one of the groups being an "advanced" group for parents who have already had some basic training.
Monday, May 2, 2011
Here is our awesome team:
Lizzy Donovan: Lizzy is a Senior Educational Consultant at ABC of NC. She has over 12 years of working with children who have autism and their families and she is currently completing her supervision to become a Board Certified Assistant Behavior Analyst. Lizzy was the Autism Society of North Carolina’s Professional of the Year in 2008.
Valorie Greene: Valorie has over 20 years of experience as a special education teacher and autism specialist in Oregon. She provides behavior consultation and conducts in-services and trainings about autism spectrum disorders.
Heather Higgins: Heather has over 12 years of experience working with children and families. She is a Speech and Language Pathologist who has studied both the medical model and educational model for treatments. Currently, she conducts therapy with the Hello Foundation in Oregon.
Selene Johnson: Selene is currently the Executive Director of ABC of NC in North Carolina. She is also a Board Certified Behavior Analyst, Licensed Special Education Teacher and Infant/Toddler Family Specialist.
Liz Kleine: Liz has been working with children who have autism and their families since 2004. She currently works in the autism center at Seattle Children's Hospital and her primary focus is on behavior and ABA.
Christine O'Shea: Christine is an occupational therapist at Pediatric Therapy Network in California. She has advanced training in Ayres Sensory Integration and she has been working with children with autism for the past 5 years in different aspects (behavioral therapist, research, and occupational therapist).
Renee Poole: Renee has been working with children and teenagers who have autism for the past 4 years. She began her career working with ASTAR (Autism Spectrum Treatment and Research) and she currently works at Seattle Children's Hospital in the Autism Center and Research Institute.
Beth Reynolds: Beth has worked for TEACCH for the last 10 years as a TEACCH trainer and consultant. She has helped set up classrooms using the TEACCH model in Ireland, England, and all over the United States.
Tracy Vail: Tracy is a Speech and Language Pathologist who has been working with children who have autism for 29 years. She helped start the Mariposa School for Children with autism and is currently a co-owner of Let's Talk Speech & Language Services in North Carolina.